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SYMPOSIUM B: Cystic Fibrosis

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Friday, June 27, 2025
2:15 PM - 3:45 PM
Hall: Barcelona B

Speaker

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Dr Silvia Gartner
Silvia GArtner
Hospital Universitari Vall d´Hebron

Latest Advances in European Cystic Fibrosis Guidelines: What Clinicians Need to Know

2:15 PM - 2:45 PM

Biography

Silvia Gartner is a specialist in Pediatric Pulmonology. She completed her specialty in pediatrics at the Ricardo Gutierrez Children's Hospital in Buenos Aires and pediatric pulmonology at Vall d'Hebron University Hospital (HVH) in Barcelona and Sickkids Hospital in Toronto. She is the Coordinator of the Pediatric Cystic Fibrosis Center (HVH) in Barcelona. She is a member of the steering committee of the "Neonatal Screening for Cystic Fibrosis" (CF) group and the "CF Standards of Care" group of the European Cystic Fibrosis Society (ECFS). She is the principal investigator of the ECFS-Clinical Trials Network (CTN) in Barcelona and of the European Reference Network (ERN)-CF in Barcelona. She has participated in more than 100 national and international conferences as a speaker. She is the editor of the book Cystic Fibrosis (Spanish). Research projects as principal investigator: more than 30 CF studies. Participation in ECFS Consensus and publication (more than 100 papers) in internationally journals. Honored at the 46th ECFS Congress in Rotterdam, (2022), as one of the 50 most woman influential physicians in CF. She is currently the principal investigator of the cellular models laboratory: intestinal organoids and nasal cells for personalized medicine in CF at the Vall d'Hebron Research Institute.
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Prof Dr Luiz Vicente Silva-Filho
Coordinator
Instituto Da Criança E Do Adolescente Hcfmusp

Cystic Fibrosis in LMICs, Challenges Amid Rising Prevalence

2:45 PM - 3:15 PM

Biography

Luiz Vicente Ribeiro Ferreira Silva-Filho, MD, PhD, is a Pediatrician specialized in Pediatric Pulmonology. His main interests are related to cystic fibrosis, respiratory infections and molecular-based diagnostic methods. He is the Coordinator of the Pediatric Pulmonology Unit of Instituto da Criança e do Adolescente HCFMUSP, in Sào Paulo, Brazil. Working with fellowship training, assistance to outpatients and inpatients, as well as clinical research, he is also the Executive Coordinator of the Brazilian Cystic Fibrosis Patient Registry since its foundation, in 2009.
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Prof Dr Malena Cohen-Cymberknoh
Head Pediatric Pulmonology Unit
Hadassah Medical Center

The Journey of CFTR from Cloning to Drug Development

3:15 PM - 3:45 PM

Biography

Professor Malena Cohen-Cymberknoh is an Associate Professor in Pediatrics at the Hebrew University of Jerusalem and serves as the Director of the Pediatric Pulmonology Unit and the Cystic Fibrosis (CF) Center at Hadassah Ein-Kerem and Mount Scopus Medical Center. She is an expert in Pediatric Pulmonology, and her research and clinical focus encompass Cystic Fibrosis, Primary Ciliary Dyskinesia, asthma, and other chronic lung diseases. Prof. Cohen-Cymberknoh plays a pivotal role in advancing CF research, serving as the principal investigator for numerous national and international multi-center clinical trials. She actively contributes to global collaborations and provides guidance to CF teams worldwide through dedicated teaching and training initiatives. Her expertise has been recognized internationally, with invitations since 2008 to lecture and moderate sessions at prestigious scientific conferences. Her outstanding contributions to the field have garnered numerous national and international prizes, awards, and competitive research grants. In 2024, she was elected as a member of the Executive Committee of the European Cystic Fibrosis Society Clinical Trial Network (ECFS-CTN), reflecting her leadership in the global CF research community. Prof. Cohen-Cymberknoh has authored over 100 peer-reviewed publications in highly regarded journals, including the American Journal of Respiratory and Critical Care Medicine, Lancet Respiratory Medicine, European Respiratory Journal, Thorax, Chest, Journal of Cystic Fibrosis, Respiratory Medicine, PLOS ONE, and Pediatric Pulmonology. Her work has significantly contributed to advancing the understanding and management of chronic paediatric respiratory conditions.

Moderators

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Grace Paul
Nationwide Children's Hospital, Columbus

Julie Willekens
Staff member
University Hospital Ghent

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